Abstract
The stress-related psychological symptoms experienced by informal family caregivers do not always improve or resolve after the death of the care recipient. The purpose of this study was to explore the independent associations of sociodemographic variables, personality and coping, environmental variables, and caregiver guilt with the sleep quality and psychological distress of former family caregivers of individuals with dementia following care recipient's death.
A cross-sectional, correlational study was conducted with a sample of 171 former family caregivers of people with dementia. Participants completed an online survey comprised of six instruments and demographic items. Caregiver personal variables (e.g. personality and coping), environmental variables, guilt, psychological distress (depressive and anxiety symptoms), and sleep quality were evaluated using psychometrically validated measures.
In bivariate analysis, post-caregiving guilt was significantly associated with depressive and anxiety symptoms (
< 0.01). After controlling for covariates, dysfunctional coping and neuroticism explained 32% of the variance in depressive symptoms (
= .52,
= .32,
(5, 165) = 36.24,
< .001) and 24% of the variance in anxiety symptoms (
= .41,
= .24,
(5, 165) = 22.65,
< .001), while dysfunctional coping, pre-loss depression, and extraversion accounted for 16% of the variance in sleep quality (
= .30,
= .16,
(6, 164) = 11.44,
< .001).
This study demonstrates the critical role of personal variables, including personality traits, coping strategies, and pre-loss depression, in explaining psychological distress and sleep quality in this sample of former dementia caregivers.